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Hope Rheumatoid Arthritis

Grateful Body

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I have had a Get Fit Book in my drawer for over a year. It got depressing to use because my body, especially my joints, is a constant source of disappointment.  My body doesn’t move the way I want it to, when I want it to. It’s required multiple surgeries, constant medication, and is completely unpredictable.

I pulled out my fit journal tonight and prepared to throw it away. And then I thought about it. Continue reading

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Hope Rheumatoid Arthritis

Validation 

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A few hours ago, I spoke with my rheumatologist about this nasty flare that I can’t seem to kick. We agreed on the cause, my father’s death recently, but we’re at a loss as to what we could actually do about it.

My pain management doctor had me do a course of steroids which, for the first time ever, made no difference. My allergies and asthma were fantastically controlled but that was it. My joints remained swollen, the pain continued to be intense, my temperature still rose, and my fatigue was just as debilitating. My rheumatologist agreed that I had taken a high enough dose where I should have felt and seen a difference.

We also agreed that it was too soon to throw in the towel Continue reading

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Rheumatoid Arthritis

Live like you’re dying

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The meaning behind “live like you’re dying” is usually to live each day to the fullest as if it will be your last day. But that’s not what I’m referring to.

This past month has been particularly rough for me. Losing my Dad at the beginning of November, set my body into a massive flare. If I’m being honest though, things haven’t been going that well for awhile now.

This is my life:

Mondays- longest, busiest day at work; when I finally get home, I put together a quick dinner for my kids and am asleep by 8.

Tuesdays- I wake up exhausted but power through my morning. Pain is bad but manageable. I try to go to the gym after work which sometimes goes well and other times, I barely make it 20 minutes. I usually have to hit the grocery store before heading home.

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Favorite Things Rheumatoid Arthritis

A Glowing Review for the Oska Pulse

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I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in now way influenced by the company.

To say I was skeptical when I first saw the Oska Pulse would be an understatement. How could a little, glowing, UFO looking device, help my intense, chronic pain from Rheumatoid Arthritis? In short, it could and it did.

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For over 60 years, PEMF signals (Pulsed electromagnetic fields), similar to those in the Oska Pulse, have been used to treat pain and edema in soft tissue. It’s been established that tissues, including blood, muscle, ligaments, bone, and cartilage respond to biophysical input. Where there is better blood flow (circulation), better structure, and turnover of old structures, significant improvement is possible. The signaling processes of the Oska Pulse are wide enough to respond to the majority of pain experiences and to help the body start its natural internal recovery processes. There are multiple scientific clinical studies that demonstrate the pain relief effects from PEMF signals, click here to learn more.

In short- pain radiates from a damaged area of the body and that same area then exhibits inflammation. When PEMF is applied, your body is stimulated to repair and renovate the damaged area. Immediate relief is delivered by reducing inflammation and long term relief is delivered from the repair mechanisms your body implements while using the Oska Pulse. Continue reading

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Rheumatoid Arthritis

Honey Colony Superior CBD Oil

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I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

First things first, what is CBD? CBD stands for Cannabidiol which is extracted from the Cannabis plant. Although CBD does not have any euphoric properties, there is the possibility for a drug test to result in a positive test for THC. Although this product contains .03% THC (federal limit is .3%) you should still use caution if you are planning to get tested. The product is legal for sale in the United States.

I’ve been using Cannabidiol products topically for the past few months- they have been very helpful in reducing my Rheumatoid Arthritis and fibromyalgia pain. I was asked to try Superior CBD Oil, made by Honey Colony, which is a custom made CBD oil that nourishes my body’s endocannabinoid system, also known as ESC. The ESC is a group of endogenous cannabinoid receptors located in the brain and the central and peripheral nervous systems. When you have a decrease in the functioning of your ESC, you can have chemical imbalances throughout your entire body. The Superior CBD Oil acts on the ESC to increase its function and promote whole body health.

 

 

 

 

 

 

 

 

 

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Rheumatoid Arthritis

Pain Relief with Quell

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Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. 


First things first, what in the world is a Quell (aside from a really cool word!)? In short, the Quell is a 100% drug free, wearable pain relief device. It’s designed for use by patients with chronic as well as widespread pain. But how exactly does it provide relief?

  • the Quell is worn only on the upper calf where it stimulates sensory nerves
  • while wearing it, Quell taps into your body’s natural pain relief response
  • those stimulated sensory nerves carry neural pulses to your brain
  • those neural pulses trigger a natural response that blocks pain signals, leading to widespread pain relief

Sounds similar to a TENS unit, right? Here’s what sets Quell apart:

  • The technology that Quell uses, called WINS (wearable intensive nerve stimulation), is five times more powerful than traditional, over the counter TENS units
  • Quell is the only over the counter electrical nerve stimulation device that has been cleared by the FDA to be used a night. This means that you can use it twenty four hours a day, seven days a week
  • Quell’s OptiTherapy customizes and adjusts therapy so you receive optimal pain relief

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Rheumatoid Arthritis

RA patients deserve better bandaids

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It’s 5:00am on Sunday morning. As the rest of my house soundly sleeps, I’m awake. I’m exhausted, woozy, easily confused. One look in the mirror shows that I’m as white as a ghost. I’m so nauseous, there is a diet ginger ale bottle within a foot of me.

Last night I injected methotrexate (see the gorgeous color of this chemotherapy medicine). This is the cause of most of my symptoms right now. 

In addition to all of my methotrexate hangover symptoms, I still have my “normal” RA issues. I’m in a lot of pain right now but unsure if taking pain medications would upset my stomach more than it is already. Just holding my phone to write this post is causing the fingers on my left hand to swell. Continue reading

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Rheumatoid Arthritis Type 1 Diabetes

Savor

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This morning I plugged a few numbers and answers into a form on JDRF.org and was presented with this:
Whoa. These numbers are estimates, they don’t include rollercoaster days and nights where I’m not sleeping and pricking my finger over and over.

They also don’t account for my life with Rheumatoid Arthritis. The injections, the blood tests, the pills, the infusions, and the time, not just sleep, that I’ve lost to pain.

They don’t account for the cost of medications and copays, the countless hours spent in doctor’s offices. And the time I spend worrying about my diseases now and what life will look like with them in future.

When I look at this, it reminds me that life is hard. Really hard. If you are in good health, savor it. Enjoy your sleep, your freedom. Appreciate your life, every minute of every day. Because, like my diagnoses of Type 1 Diabetes and Rheumatoid Arthritis, poor health can come out of nowhere.

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Hope Rheumatoid Arthritis

I am not my burden

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Steve Rosenfield joined fellow Rheumatoid Arthritis advocates at our Joint Decisions Empowerment Summit in  Philadelphia almost two weeks ago. Simply put, the What I Be Project by Steve Rosenfield is a “photo project which focuses on building security through insecurities”. If you haven’t heard of this project before, do me a favor and click on the link- it’s an amazing idea.

molly

“I am not my burden”

My biggest insecurity? Asking for help. Accepting help. Feeling deserving of help. My diseases are a burden to myself and to everyone around me- family, friends, coworkers. They are a financial, emotional, physical drain.

My medications are so expensive, why should I feel that it’s ok to spend extra money on getting my hair done or buying lunch? I don’t deserve “treats” because I am a financial drain on my family. Continue reading

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Rheumatoid Arthritis Type 1 Diabetes

It’s Not Pretty

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This is what I look like after:

  • Spending my commute screaming f*ck because the sciatic pain was at its worst
  • Trying to work all day with a fever
  • Being unable to get my blood sugar down because the pain is causing it to rise
  • Drinking a ridiculous amount of caffeine so I don’t fall asleep driving home later
  • Sitting on an ice pack all day because I can’t get my back to stop hurting
  • Getting ready to drive home with my sciatic nerve feeling like someone is stabbing me up and down my leg

Just living with Rheumatoid Arthritis and Type 1 Diabetes is hard enough but working full time and caring for a family is a battle a lot of patients, like me, fight every day.

I’d be disrespecting myself and my community if I only showed my “good” photos and didn’t share my struggles. So here I am. It isn’t pretty.

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