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Rheumatoid Arthritis

Release the burden!

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Back in October, I had the pleasure of being with fellow RA patients in Philadelphia for our Joint Decisions Summit. On the last day, we had the chance to participate in the What I Be Project (you can read about my experience here).

After some discussion with the founder, Steve Rosenfield, I decided that I needed to be free of feeling like a burden. A financial, emotional, physical burden.

For the few months following the summit, I had a better perspective. Sure I would say that I was sorry to my husband too many times and yes, unnecessary tears were shed but I really tried value myself. Until this morning.

If you follow me on Instagram or twitter, you may know that I am almost always in some state of nausea. My pain patch makes me nauseous and when I take my morning or evening meds, my nausea spikes significantly (post methotrexate injection nausea is in a category of its own). I drink ginger ale every morning on my commute- I have my nausea attack down to a science. I have Zofran but I try to save it for when I’m traveling or really need to function after methotrexate.

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Family Hope

Regret

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You’ve heard it before “make sure you tell someone you love them, you may never see them again”. I make sure I say “goodbye” and “I love you” to my kids every morning and night. If I died tonight, they would know I loved them. Not because I said the words often. Because they felt it. They know just how important they are to me, they know that I would do anything for them.

But that’s not true with everyone in my life and I think it’s safe to assume that it’s not true for you either. Continue reading

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Chronically Grateful Rheumatoid Arthritis

Family Support Team

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Day 5 of the #ChronicallyGrateful challenge: Who on your family support team are you most Grateful for?

Well, this one was super easy to answer, my husband! He is always there for me. Always. He listens to me when I need someone to hear me but he also knows when I need someone to be strong for me and tell me what to do. I know he would do anything for me and I can’t imagine how hard it is to support someone in constant pain..someone who is in fear of what the next day will bring. But he does it without asking for anything in return. I love him so.

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