fbpx
And Then You're At Jax » Blog Archives

Tag Archives: Diabetes

Rheumatoid Arthritis

Unpredictable

Published by:

After an evening of pain and irregular sleep, it was surprising to wake up this morning and actually feel ok. I didn’t have any major pain and was able to make breakfast for my family without feeling wiped out afterwards. I took my Meloxicam anyway. 

I ran errands with my daughter which I’m rarely able/willing to do because of either fatigue or pain. Nothing crazy- pharmacy, library, car wash, quick trip to the grocery store. I felt so great when I got home that I sat outside, listened to my audiobook, and enjoyed the Baltimore weather for a few minutes. I took a nap afterwards for about an hour, much shorter than usual! I dropped my son off to play basketball with some friends. Then I came back home. 

The minute I walked in the door, I knew it was coming. I sat my keys down on the counter and saw that my fingers were swollen. My hands started to ache terribly and both legs joined them. I felt like I had just gotten knocked down. 

What the hell? I didn’t do anything. I didn’t go run a marathon, didn’t clean the house, or even go to work. Why would pain come on so suddenly? 

I walked down to the basement to get the laundry, laid down on my husband’s weight bench, and cried. The pain was so strong and so frustrating. 

I always say that having Rheumatoid Arthritis is ten times worse than having Type 1 Diabetes. I don’t mean because of complications, life expectancy, medications, etc. Even though diabetes can is unpredictable, it at least gives you moments of consistency. You can at least assume that if you eat a Snickers bar, your blood sugar will go up (most of the time, ha!). Rheumatoid Arthritis has provided me with nothing even close to predictability. I have no idea what each day will bring. All I know is there will be pain at some point, in some capacity. 

Type 1 Diabetes

It isn’t the end of the world..

Published by:

I used up my last Enlite sensor last week. Due to an error in Minimed’s system, my order from weeks ago had been caught in limbo until tonight. (My order just shipped, huzzah!) Was I super annoyed with Minimed? Yes. Did I spend hours on the phone with them? Yes. Did I die without having CGM enabled? No. Not even close.

I truly thought the past few days would be horrendous. I considered not going to work, staying home to monitor my blood sugar behind closed doors. I seemed to have quickly forgotten that I spent the first 22 years or so of my Type 1 life relying on a blood glucose machine and the pricks of my fingers. I forgot that I used to go hours without a single finger stick. I relied on my long acting insulin and, more importantly, how I felt.

Over these past few days, I had a few nighttime lows- in the 60s, yet I woke up on my own and not to the sound of a screeching alarm. For the most part, every time I checked my blood sugar it was pretty much on point.

As convenient as an insulin pump and CGM are, I really need to stop relying on them. I need to be able to go an hour and not be constantly looking at my screen to see which way my arrows are going. I need to make a more conscious decision to not correct every little blood sugar because that usually results in a reading which is higher or lower than necessary. I need to realize that I am Molly not Molly, the Type 1 diabetic. I’m working on it 🙂

Daily Prompts Type 1 Diabetes

Kick It

Published by:

I’m playing catch up! The Daily Prompt for January 3: Kick It

What’s the 11th item on your bucket list?

I don’t have a bucket list..maybe I should, maybe I shouldn’t. But, while thinking about this post, I’ve come up with one item. I’d like to take a trip, by myself. Not because I want to get away from my family but because I want to prove to myself that I can do it. I’m extremely independent, I can’t stand depending on others (I’m working on it), but a trip on my own sounds a little scary. I’d like to force myself to go away, even just for a weekend, somewhere that I’d have to use air transportation to get to.

Since I’m a Type 1 Diabetic and have to travel with all of my medications and devices, flying makes me anxious. I hate being patted down in front of everyone and having the TSA act like I’ve somehow made a bomb look like a juice box. I always feel “safer” when someone else travels with me. For some reason having to slam a bottle of apple juice because I’m low isn’t as awkward if someone is with me. When I get finished with my pat down, someone is waiting on the other side of the line to joke with me or help me get my things together.

The thought of sitting alone in a restaurant for dinner, sounds awfully intimidating. Do I need to work on not caring about others judging me? Should I work on being comfortable while alone in public? Definitely. I think a trip is in order.

Type 1 Diabetes

Obligatory Venting Post

Published by:

ecard

Yesterday at work, I was speaking to a parent on the phone. The parent mentioned that his child was pre-diabetic and then proceeded to say “I’m sure you don’t know much about that”…hmm. I immediately told him that I was actually quite familiar with diabetes as I have had Type 1 diabetes for 25 years. His response floored me:

“Wait. You actually work?” Yes.
“Full time?” Yes. “You went to college too?” Yes.
“So you have diabetes and a job?” Yes.
“Wow. That’s not normal. I guess there’s hope.” Uhh..

Type 1 Diabetes

Hide and Seek

Published by:

One thing (and maybe the only thing) I liked about my Omnipod was that once I stuck it on, I was good to go- I could wear anything I wanted without thinking twice. Sure sometimes the lump was noticeable through fitted clothes but most of the time, no one knew I had it on.

In comes my new Minimed 530G Pump. I love it. I love how consistent my insulin delivery seems to be and that my blood sugar is displayed on the pump as well..no more carrying around a separate Dexcom unit.

Know what else I love? Dresses. With Tights. And sometimes with long sleeves under them (under the dress, not under the tights). And sometimes a sweater over top, especially when my office has the a/c on in November.

What don’t I love? Having to figure out where in the world my pump is going to go. If I wear a belt and a cardigan over top, I can string the tubing through the armhole of the dress and then clip the pump onto the belt. Still a lump but not a big deal. But, what if I don’t want to wear a belt? Or a cardigan? Like today. I ended up having to throw on a sweater and a belt because I couldn’t for the life of me figure out where to put my pump (and I was already running late, shocking).

20131106-121358.jpg

If I didn’t have the CGM on the pump, I would easily clip it to my tights under my dress but I’d have to lift up my skirt to look at my blood sugar. Maybe it’s just me but I tend to check that thing all day long and flashing people every 20mins isn’t the best idea.

Any suggestions would be greatly appreciated. At this point, I’m ready to attach the pump to a necklace around my neck. A necklace made of tubing.

Type 1 Diabetes

Stop, Calibrate, and Listen.

Published by:

Up and running on the Minimed 530G. Up until about an hour ago, my numbers correlated with how I felt and my Dexcom G4. Naturally, I removed my Dexcom, feeling pretty confident in my Minimed system. So wrong.

20131102-221928.jpg

Update: 11/04/2013

Must have been a fluke with the new system..maybe it just needed time to warm up but all day yesterday and today, things have been great! My Enlite CGM number is within points of my fingersticks and I’m quite pleased with having everything on one device. Check out a post later this week when I’ll compare the Omnipod, Dexcom G4, and Minimed 530G with Enlite.

Type 1 Diabetes

National Diabetes Month

Published by:

Every year, JDRF, the Juvenile Diabetes Research Foundation, offers a really neat opportunity. People without diabetes can register for a text campaign which will help them to understand a bit more about what life with Type 1 diabetes is like. (I’d love it if they actually had some sort of pill or device that would allow someone to feel low and high..the “feelings” of diabetes are hard to describe to someone who is generally pretty healthy- this campaign is a great start though). Click on the image to sign up. T1Dcarousel

And while you’re at it, consider starting a team for the JDRF Walk to Cure Diabetes. You’re more than welcome to join or donate to my team too! 🙂