Rheumatoid Arthritis Type 1 Diabetes

Perspective


My first infusion was done in a small room with only two infusion chairs. Last week, was my second infusion of Simponi Aria and it was in the “main” infusion center. From what I could tell, most of the patients were fighting cancer.  

I thought to myself, “they are fighting a much harder battle than me, I’m just here for Rheumatoid Arthritis”. And then it hit me. Everyone’s battle, including mine, is important. Just because I’m injecting my small dose of chemotherapy at home and getting a biologic infusion, doesn’t mean that the infusion process is any less scary or intimidating for me. My disease will never be in remission. I have permanent damage to my joints and bones as a result of Rheumatoid Arthritis and no amount of chemotherapy is going to fix that. I could very likely be sitting in that infusion chair, every 8 weeks, for the rest of my life.

So I’m going to try to keep things in perspective. When I see someone cry or flinch while getting a flu shot, I’m going to try to remember that just because I have given myself shots for 28 years, not everyone else has. 

 

Share

2 comments

  1. Rick Philips

    I had to have an infusion in a burn unit. I thought wow, I am so fortunate. Then I had one in a cancer unit, wow I was so fortunate. Then I had one with other RA patients, where my infusion lasted 6 hours and the others were le4ss than an hour. A person in another chair said how fortunate he was. Wow, we are all fortunate and misfortunate it depends on one’s perspective.

  2. Pippit

    I think in lots of ways autoimmune diseases are worse than having cancer. You see all these public service announcements about cancer survivors going on long walk-athons, but don’t see too many with serious autoimmune diseases doing that. The only difference is the general public’s perception that cancer is the worst thing that can happen to them. I can think of alot of diseases I would NOT rather have!

Leave a Reply

Your email address will not be published. Required fields are marked *