Days like today mean that I win! Screw you Rheumatoid Arthritis and Type 1 Diabetes!
Such a good read. I see and hear the term #diabetes used to describe what people are eating far too much…
I used up my last Enlite sensor last week. Due to an error in Minimed’s system, my order from weeks ago had been caught in limbo until tonight. (My order just shipped, huzzah!) Was I super annoyed with Minimed? Yes. Did I spend hours on the phone with them? Yes. Did I die without having CGM enabled? No. Not even close.
I truly thought the past few days would be horrendous. I considered not going to work, staying home to monitor my blood sugar behind closed doors. I seemed to have quickly forgotten that I spent the first 22 years or so of my Type 1 life relying on a blood glucose machine and the pricks of my fingers. I forgot that I used to go hours without a single finger stick. I relied on my long acting insulin and, more importantly, how I felt.
Over these past few days, I had a few nighttime lows- in the 60s, yet I woke up on my own and not to the sound of a screeching alarm. For the most part, every time I checked my blood sugar it was pretty much on point.
As convenient as an insulin pump and CGM are, I really need to stop relying on them. I need to be able to go an hour and not be constantly looking at my screen to see which way my arrows are going. I need to make a more conscious decision to not correct every little blood sugar because that usually results in a reading which is higher or lower than necessary. I need to realize that I am Molly not Molly, the Type 1 diabetic. I’m working on it 🙂
I’m playing catch up! The Daily Prompt for January 7: Helpless
Helplessness: that dull, sick feeling of not being the one at the reins. When did you last feel like that- and what did you do about it?
I feel this way every day..I just wouldn’t call it helpless. As anyone who has had Type 1 Diabetes for quite some time (25 years for me) knows, you can do the exact same things 2 days in a row and have completely different blood sugars each day. Sometimes your blood sugar is low, no matter how many glucose tabs you eat, and how little insulin you take. I’m sure there’s an explanation- hormones, weather, who knows..but it happens. Every day, my little mechanical pancreas helps me hold the reins for the hopefully-not-so-bumpy day that lies ahead.
I’m playing catch up! The Daily Prompt for January 3: Kick It
What’s the 11th item on your bucket list?
I don’t have a bucket list..maybe I should, maybe I shouldn’t. But, while thinking about this post, I’ve come up with one item. I’d like to take a trip, by myself. Not because I want to get away from my family but because I want to prove to myself that I can do it. I’m extremely independent, I can’t stand depending on others (I’m working on it), but a trip on my own sounds a little scary. I’d like to force myself to go away, even just for a weekend, somewhere that I’d have to use air transportation to get to.
Since I’m a Type 1 Diabetic and have to travel with all of my medications and devices, flying makes me anxious. I hate being patted down in front of everyone and having the TSA act like I’ve somehow made a bomb look like a juice box. I always feel “safer” when someone else travels with me. For some reason having to slam a bottle of apple juice because I’m low isn’t as awkward if someone is with me. When I get finished with my pat down, someone is waiting on the other side of the line to joke with me or help me get my things together.
The thought of sitting alone in a restaurant for dinner, sounds awfully intimidating. Do I need to work on not caring about others judging me? Should I work on being comfortable while alone in public? Definitely. I think a trip is in order.
Yesterday at work, I was speaking to a parent on the phone. The parent mentioned that his child was pre-diabetic and then proceeded to say “I’m sure you don’t know much about that”…hmm. I immediately told him that I was actually quite familiar with diabetes as I have had Type 1 diabetes for 25 years. His response floored me:
“Wait. You actually work?” Yes.
“Full time?” Yes. “You went to college too?” Yes.
“So you have diabetes and a job?” Yes.
“Wow. That’s not normal. I guess there’s hope.” Uhh..
One thing (and maybe the only thing) I liked about my Omnipod was that once I stuck it on, I was good to go- I could wear anything I wanted without thinking twice. Sure sometimes the lump was noticeable through fitted clothes but most of the time, no one knew I had it on.
In comes my new Minimed 530G Pump. I love it. I love how consistent my insulin delivery seems to be and that my blood sugar is displayed on the pump as well..no more carrying around a separate Dexcom unit.
Know what else I love? Dresses. With Tights. And sometimes with long sleeves under them (under the dress, not under the tights). And sometimes a sweater over top, especially when my office has the a/c on in November.
What don’t I love? Having to figure out where in the world my pump is going to go. If I wear a belt and a cardigan over top, I can string the tubing through the armhole of the dress and then clip the pump onto the belt. Still a lump but not a big deal. But, what if I don’t want to wear a belt? Or a cardigan? Like today. I ended up having to throw on a sweater and a belt because I couldn’t for the life of me figure out where to put my pump (and I was already running late, shocking).
If I didn’t have the CGM on the pump, I would easily clip it to my tights under my dress but I’d have to lift up my skirt to look at my blood sugar. Maybe it’s just me but I tend to check that thing all day long and flashing people every 20mins isn’t the best idea.
Any suggestions would be greatly appreciated. At this point, I’m ready to attach the pump to a necklace around my neck. A necklace made of tubing.
Up and running on the Minimed 530G. Up until about an hour ago, my numbers correlated with how I felt and my Dexcom G4. Naturally, I removed my Dexcom, feeling pretty confident in my Minimed system. So wrong.
Must have been a fluke with the new system..maybe it just needed time to warm up but all day yesterday and today, things have been great! My Enlite CGM number is within points of my fingersticks and I’m quite pleased with having everything on one device. Check out a post later this week when I’ll compare the Omnipod, Dexcom G4, and Minimed 530G with Enlite.
Every year, JDRF, the Juvenile Diabetes Research Foundation, offers a really neat opportunity. People without diabetes can register for a text campaign which will help them to understand a bit more about what life with Type 1 diabetes is like. (I’d love it if they actually had some sort of pill or device that would allow someone to feel low and high..the “feelings” of diabetes are hard to describe to someone who is generally pretty healthy- this campaign is a great start though). Click on the image to sign up.