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Category Archives: Rheumatoid Arthritis

2,016 Miles in 2016 Rheumatoid Arthritis Type 1 Diabetes

Triple Digits

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2,016 miles in 2016!(3)

I’ve reached triple digits in my 2,016 miles in 2016 challenge! This week was especially hard. With a nasty blizzard on it’s way, my joints were angry all week in anticipation. I rejoined the gym and was able to use my favorite machine, the Arc Trainer, which is much more gentle on my joints than walking or doing other cardio exercises. If you have Rheumatoid Arthritis or any joint issues, I highly recommend giving it a try.

The other hurdle I’m trying to deal with is my blood sugars plummeting while I exercise. My endo gave me a lot of suggestions on when to start temp basals on my pump, what to eat, etc. but this week was still bumpy. Even after eating a banana and a peanut butter sandwich before exercising, having my insulin completely suspended, I will still drop dramatically during exercise. I hate the idea of having to eat because of exercise, very frustrating. This week I’m going to try drinking Gatorade while I exercise- low cal but has some sugar so hopefully it will keep me in check. If you have Type 1, like me, how do you deal with lows while exercising?

In order to meet my weekly mile goal, I made sure I went to the gym every day, Sunday through Friday, including Thursday night and back Friday morning before the storm. I gave myself a much needed break on Saturday (doubt I made it over a mile). Today my joints are still pretty painful plus I have the added bonus of a methotrexate hangover but I’m hoping to meet my step goal by moving around my house. We’ll see!

 

2,016 Miles in 2016 Rheumatoid Arthritis Type 1 Diabetes

Still moving..

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2,016 miles in 2016!(1)

It hasn’t been easy but I’ve kept up with my goal of walking/running/crawling/dancing my way to 2016 miles in 2016. There are days that I don’t want to move at all and days that despite telling myself the opposite, I don’t feel better after reaching my goal of 5.5 miles a day…I actually feel worse.

But I’ve kept on. Why? How?

  • I’ve made my goals public. Very public. I talk about them at work, at home. I post on Instagram, Twitter, and Facebook.
  • I’ve broken down my goal into smaller daily/weekly goals.
    • 5.5 miles a day or 38.8 a week doesn’t seem as insane as 2,016 miles
  • I have even smaller goals for steps during the day at work
    • 2,000 by 10am; 3,500 by 12pm, etc.
    • I try to get up and move around every 30 minutes, even if it’s just marching in place

I’d be remiss if I didn’t mention my Fitbit. From weekly or weekend challenges with friends to just seeing my steps and miles go into the “green”, my Fitbit One is a tremendous motivator and makes keeping myself accountable super easy.

How are your resolutions or goals going? What helps you to stay on track?

2,016 Miles in 2016 Rheumatoid Arthritis Type 1 Diabetes

Resolution to move!

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2,016 miles in 2016!

This year I’ve committed to walking/running/crawling/dancing my way to 2,016 miles in 2016! This resolution was an easy one for me to commit to in theory. Getting my steps in each day makes my blood sugars better, makes them more consistent. Walking makes my joints feel better (my knees haven’t gotten this memo yet but they’re working on it) and will strengthen the muscles around my joints, providing them with better support.

So how does 2,016 miles translate to daily goals? I need to get between 5.5 and 6 miles in each day. This is about 12,000 steps or so depending on the activity I do. On days I’ve been feeling strong, I’ve tried to get a little more than 6 miles to cover the days where my joints are angry and having nothing to do with any resolution I’ve made.

Every Sunday I plan on updating this graphic to keep myself accountable. I track with my Fitbit and they calculate my weekly miles to make it easy for me.

What resolution(s) have you made? Are you still going strong on Day 10?

Rheumatoid Arthritis

Medicine? No, thank you.

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I’ve had a wonderful, productive weekend. Went to the grocery store Saturday morning, got my hair highlighted and cut in the afternoon, and made a delicious, healthy meal, from scratch, for dinner. Got up early on Sunday, exercised, did laundry, and cleaned. After a short nap, I finished measuring and bagging my food for the week. Now here I am, blogging.

Isn’t this what “normal” people do on their weekends? (Well, they probably do more but you know what I mean) So why is this weekend any different? I didn’t inject methotrexate or Enbrel on Saturday morning as I have done for months. I’ve been fighting this nasty cold and instead of gambling, I decided to skip my injections and let my immune system have a fighting chance.

I’ll probably feel horrible in a few days but for right now, I’m thrilled. I haven’t been sipping ginger ale nonstop, only stopping to eat a few cheerios here and there. I haven’t slept for hours on end and accomplished absolutely nothing on Saturday or Sunday. I don’t feel like I’ve been hit by a truck and my stomach feels marvelous.

I know methotrexate and Enbrel are important. I know I need them. But times like this, I hate them. And I hate Rheumatoid Arthritis. I hate that the very medicine that helps keep my joints from being damaged, the medicine that hopefully helps protect my organs from this disease, also literally takes away days of my life.

Chronically Grateful Rheumatoid Arthritis

Time

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Day 23 of the #ChronicallyGrateful challenge: Where are you Living right now? The past, present, or future?
  
I’m often somewhere between the present and the future. Living with Chronic Pain forces you into the present. Sometimes pain is the only thing you can see. It consumes you. 

The future is worrisome. I avoid thinking about it as much as possible. How long will I be able to work, walk, care for myself? Will the pain get worse? 

On the flip side, if you have a Chronic Illness like Rheumatoid Arthritis, you sometimes have to think of the future. You have to know that a day after your methotrexate injection, you’re going to be extremely nauseous and sleep most of the day. You also have to be aware that overdoing it today could be quite painful tomorrow. 

Time is a delicate line that we walk. We’re constantly paying for the past, distracting ourselves from the present, and trying not to fear the future. 

Chronically Grateful Rheumatoid Arthritis

Courage 

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Day 19 of the #ChronicallyGrateful challenge: What is the most Courageous Act you’ve completed despite your chronic condition? 
  

I haven’t given up. 

There are days I want to. Times when the pain is so strong that I don’t know what the next hour will look like. There are times when I’m angry that I have this disease. Times that I’m frustrated that no one around me truly knows how I feel. But I don’t give up. And that is the most courageous thing I’ve done thus far. 

Chronically Grateful Rheumatoid Arthritis

Disease with Benefits

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Day 18 of the #ChronicallyGrateful challenge: What is a way you’ve benefited from having a Chronic Condition?  

This may be my new favorite quote. I have no idea how I stumbled across it but it suits me and today’s prompt perfectly. 

Sometimes you have to feel your worst, to feel your best. It took being diagnosed with Rheumatoid Arthritis for me to really slow down and appreciate what’s around me. My chronic condition may make me walk slower than I’d like at Target but that affords me lots of laughs with my daughter as she tries on silly accessories or shows me every funny cat costume in the store. If I were rushing through my errand, I would miss these little moments. 

I spend more time on the couch than I’d like to admit but that means that my son has turned me into a big NBA fan and he loves to sit and talk about whatever game is on. I may never have watched a basketball game if I had been up and running around to do something far less important than spend time with him.

Chronically Grateful Rheumatoid Arthritis

Lessons

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Day 17 of the #ChronicallyGrateful challenge: What is a Major Lesson you’ve learned from your chronic life?
  

I can do a lot of things but I can’t do them all in one day. This doesn’t apply to big items- dreams, accomplishments. It applies to “normal” daily tasks- cleaning, cooking, shopping, showering, etc. 

I will need the same amount time to recover from cooking dinner from scratch as I would need from spending a day working or completing a race. 

The hard part about this lesson is getting others to understand. And the even harder part is coming to terms with your own limitations. I’m still working on both of these ?

Chronically Grateful Rheumatoid Arthritis

Positivity 

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Day 16 of the #ChronicallyGrateful challenge: On a bad day what is a way to redirect yourself to a more positive place?
  
Today has been rough. I woke up with pretty strong pain. Resisted the urge to burst into tears on the drive to work. Resisted the urge to cry before I got to my car after work. Pain is relentless. I’m now lying in bed with ice on both of my legs, my thumb in a brace, and pain meds already on board. 

Days like today are hard to pick myself up out of. I can’t even go to sleep, I’m too uncomfortable. 

So how do I get things back on a positive path? I vent. I share online with others that know exactly how I feel. I share a laugh with my kids. I grab the cat and rock him like a baby (he hates it!). I put something mindless on tv and do a jigsaw puzzle on my iPad. I color. I do anything to give my mind a break from constantly assessing how I feel. 

Am I going to scream “I Love Rheumatoid Arthritis” out my window? Nope. But if I can get my mind to focus on something else, even for 2 minutes, I win. 

Chronically Grateful Rheumatoid Arthritis

Icy Relief

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Day 15 of the #ChronicallyGrateful challenge: When dealing with your chronic condition, what is a product or service you’re Grateful for?
  

I love ice packs and I have quite a few. When the pain gets really bad, an ice pack can hold me over until pain meds kick in. You can find me most nights with 2 of my cervical Torex cold packs across my legs, a smaller pack under my left elbow, and another on my shoulder. 

In addition to standard packs, I have gel inserts for mittens and booties that are kept cold in the fridge. I also have a frozen eye mask for headaches, sinus or TMJ pain. 

Natracure has an awesome assortment of cold products (or heat if that works for you)- I encourage you to check them out!