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Daily Archives: July 15, 2017

Rheumatoid Arthritis

Book Review: The Memory of Health

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I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

“The Memory of Health”, by Edie Summers, is a fascinating read. As someone who has multiple autoimmune diseases and has acquired fibromyalgia as a secondary illness to my Rheumatoid Arthritis, this book really speaks to me. I see it as a piece of work that I will continue to reference for years rather than a book that is read once, not to be picked up again.

Unique Formatting

It isn’t formatted in the typical sense- chapters of simple text, which really works for this book and its content. Edie includes her journal entries which give an interesting glimpse into the author’s life and struggles with chronic illness, from her perspective. I think a lot of patients can identify with keeping a journal but I think we can also learn from Edie, that it’s important to look back at these entries and to consider sharing them. The book also includes the author’s poetry which is a welcome addition to see how ones illness and creativity come together. The journal entries and poetry are accompanied by beautiful images as well. Diet information is dispersed as well- why eating greens, avoiding meat, etc.

The way Edie uses different formats and references different topics thoughout the piece, makes this book feel like it’s giving you more than someone’s story, it’s giving you helpful information that you can use in your own healing health journey.

“Tell your story. Release your soul…”

One of my favorite themes that repeats itself through the book, is how important it is to tell your story. This is so incredibly important to me, as it should be to you. Edie shares that this book gave her a forum to share her stories whereas she had previously felt scared or that she didn’t have anyone she could share with that would understand where she was coming from.

Edie writes that the stories we tell ourselves are often different than the stories our bodies are telling us. She tells us that the story our body is telling us, is the story we need to listen to especially if you are trying to heal. We can’t see where we’ve come from if we haven’t documented every moment of the story.

The Real World is Impacting your Health

This was a really interesting section of the book for me- it covered September 11th, Agent Orange, chemical injuries, Mesothelioma, Veterans, environmental illnesses, and fragrances and how all of these chemicals in our environment are affecting our health.

Popping a pill isn’t always the answer

This section was also a good call to action for patients. A lot of people choose to self medicate before looking at other ways of managing a condition- whether it’s through lifestyle changes or nutrition. It’s important to me to have a holistic approach to my diseases- yes, medicine is absolutely required for me. I’ve also learned that some foods make my symptoms better and some make it much worse. Rest is incredibly important- and yes, it doesn’t come easy but it needs to be a priority. And, as the author points out, it’s important to weigh side effects before staring or continuing a medication. Make sure you do your own research and don’t just blindly take a pill.

If you’d like to check out some additional reviews of “The Memory of Health” please visit Amazon. But, if you’re interested in purchasing a copy for yourself, click here to purchase it at a 40% discount!

 

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Surgery Necessities

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If you’ve been following me on social media, you have seen me talk about my knee surgery a lot. On June 1st, 2017 I had a pretty invasive surgery on my knee that I knew would involve at least 2 months on crutches, a brace for most of the summer, and a hard recovery. I shared in this post, how I was preparing my life for surgery. I’ve learned over the past few weeks that in addition to preparing your job, your home, etc for surgery, there are things that are really helpful to have on hand. Don’t be like me and learn as you go (and place Amazon Prime orders almost every day)! And please, tell me what you would include as I would love to make this as comprehensive of a list as possible.

Amazon Prime

Speaking of Amazon Prime this service has been an absolute lifesaver for me post-op. I did an Amazon Prime 30-Day Free Trial which was great for me so I could get the things I needed right away, sometimes the same day, if not the next. In addition to getting some of the items you’ll see below, I ordered cat food, litter, shampoo, vitamins… This trial is something I’m probably going to continue or look into having items shipped from Target. I spend a lot of my precious energy going to Target every weekend to stock up on non-perishables. Sometimes that big Target trip is all I can accomplish without having to rest the remainder of the day. When I’m fully recovered, I’m definitely going to look into what I can have shipped to my door for a similar price.

Gloves

Yes, it’s summer here in Baltimore and yes, I’m saying that gloves are a mandatory item to have if you’re going to be on crutches full-time like me. I had ordered these awesome gloves from G-Loves prior to surgery because I was having so much trouble at the gym. My hands were in too much pain to hold on to weight training equipment. These gloves gave me the protection and padding I needed to get my workouts back on track with minimal pain.

I decided to try them with my crutches and they were awesome! I wear them all the time and haven’t had any wrist or hand pain from my crutches which is a big deal since my Rheumatoid Arthritis has been flaring. You’ll also see my Wonder Woman wrist wraps in the photo which would be great if you don’t need full hand support and they’re only $12!

 

Bolster Pillow

For the first week post-op, my sleep and swelling was awful. I had a tower of pillows that I used to elevate my knee and that tower wasn’t the best. I spent the whole night trying so hard not to move, so my tower wouldn’t fall down. I had my family haul pillows up and down the stairs, depending on which room I was sitting in. I went to physical therapy and my therapist had me rest my leg on a bolster while she iced my knee. I fell asleep instantly. She told me to look on online, that the products wouldn’t be a as sturdy (or as expensive), but that I could probably find a good one. I’ve learned from others that some orthopedic surgeons prescribe these prior to surgery and that they couldn’t believe I was trying to recover without one.

Here’s the one that I ordered- Restorology Elevating Leg Rest Pillow Memory Foam Leg Rest Pillow
I’d encourage you to read reviews and make sure the pillow will stay firm and check the measurements to make sure it’s high enough for your ideal elevation.

 

Compression Socks

Prior to surgery, I owned compression socks. Post surgery, I realized that those socks were enough for mild Rheumatoid Arthritis swelling but were no match for post op swelling. I ended up with 3cm of fluid in my ankle and was in a lot of pain as a result. I highly encourage you to have quality compression socks on hand- they really make a difference in recovery.

These socks, PRO Compression: Marathon Compression Socks, are the brand I ended up buying because they come in so many cool colors and patterns! I’m a sucker for fun, colorful socks anyway!

 

Your Pride

All of these items were extremely helpful but there is one thing that you actually don’t need when recovering. But do you know what you don’t need? Your pride. Getting comfortable with asking others to help was hard for me but necessary- I can’t drive myself anywhere, I can’t even cook yet. Admit when you’re hurting, admit when you just can’t do something. I can’t tell you how much better recovery will be if you put yourself first.

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